Sunday, March 11, 2012

How to Handle Hashimoto’s

On February 29, 2012, I was diagnosed with Hashimoto’s disease.

How do the medical professionals plan to treat or cure it? They don’t. Their response to, “So what do I do?” was on par with, “Just deal with it/Own it/This is who you are.”

A former boss of mine once ran down a list of her chronic physical ailments. When she got to Hashimoto’s disease, I distinctly remember thinking, “Man, if I ever have to get a disease, that’s the one I want.” And here I am. Could I have willed this to happen?

The years of bizarre weight and energy-level fluctuations have almost all been worth my now being able to go up to someone, look this person in the eye, and say: “I have Hashimoto’s disease.” The facial expressions I get in return are the stuff retorts are made of.

It sounds like most people with Hashimoto’s say (and only when asked): “I have a thyroid condition” or “I’ve got a jacked-up thyroid.” Not me. It’ll be Hashimoto’s this, Hashimoto’s that. Hashimoto-based haggling, Hashimoto-ing my way to getting an entire row of seats to myself on the subway (“Oh honey, I wouldn’t sit there if I were you, what with my Hashimoto’s disease and all…”), etc., etc.

Let the ownership begin.

8 comments:

  1. Oh, Kadzi, I'm so sorry to hear about Hashimoto's disease. When I was diagnosed with Type 2 diabetes 5 years ago, I couldn't bring myself to talk about it to anyone other than immediate family and a couple of friends for about three years. (I understood Paula Dean's slowness in communicating to her public all too well.) You are very courageously charging ahead in talking about Hashimoto's with people; you are way ahead of the curve here. I hope you continue in your strong way, with no setbacks. Hope to see you soon. If you don't feel like dinner, perhaps coffee, or a bottle of water

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  2. http://www.mayoclinic.com/health/hashimotos-disease/DS00567
    I found this after reading your posting. Probably you already know a lot about your issue, but just in case...Wish you courage and good disposition towards whatever is ahead. Keep us posted on your findings. I care.

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  3. I had to google Hashimoto and I'm really sorry to hear about your condition. My health is not perfect either (although I haven't been formally diagnosed with anything - don't want to be) but I suffer from various severe allergies and an Endocrine System that is less than healthy *sigh*
    Hope you get to live a meaningful life regardless.

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  4. People, this is not a serious condition! That's why the doctors are unconcerned and why I'm joking about it - the name makes it sound so much worse than it actually is. There are so many people (especially women) walking around with this throughout their adulthoods who don't even know it!

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  5. That's right. Own it! Hope they can offer you some relief but I'm sure you're somewhat satisfied to at least know what it is.

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  6. So glad the doctors are unconcerned and you're doing well. (and more than coping with it!) I never heard of Hashimoto's before -- sounds so complex & mysterious. Which is exactly why you're poking fun at it. God, I love your style! :o)

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  7. There are different levels and extremes of Hashimoto's. Not everybody is on the exact same level. That's why people are on different doses of meds. The people who don't know they have it are probably not as extreme. I have a brother who can't even hardly get struggles to get out of bed because the severity of the disease. He is on a very high dose of his meds due to having an extreme case. You must not have it very severe. You're lucky. You can't speak for everyone though.

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  8. There are new treatment options for Hashimoto’s that are very effective. Most of your immune system is located in the gut. If you have imbalances it can result in autoimmune disease including Hashimoto’s.

    I write about it on the thyroid blog

    http://outsmartdisease.com

    You are welcome to visit!

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